Ben Cook

There are approximately 40,000 Americans living with cystic fibrosis, which is a rare, genetic, life-shortening disease that impacts every organ in the body and makes it difficult to breathe. Our daughter Maya was diagnosed with CF soon after she was born. You can read more about her story on our Maya's Fam team page. Since Maya's diagnosis, we have been struck by the overwhelming generosity, love and support from our family, our community (who we consider an extension of our family) and complete strangers in the CF community including members of our Cystic Fibrosis Foundation local chapter.

The Cystic Fibrosis Foundation does so much by advocating for and funding research and drug development as well as helping provide care and support for families impacted by CF. Real progress has been made for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short. We’ve come so far, but there’s still so much work to do. I will not stop striding until all those with cystic fibrosis have a cure. We will not leave anyone behind.

Please support me!

We are at a pivotal moment in the history of cystic fibrosis and your support matters. With your help, we can invest our resources in research today, while raising funds for tomorrow, to ensure we have what it takes to reach the finish line. Together, we can make CF stand for Cure Found. Will you join me and Maya's Fam and support our fundraising goal?