Danielle Driggers

Aspen was diagnosed with cystic fibrosis at 10 days old in 2013. On April 8, 2013, my family jumped into the fight, feet first, and have been avid supporters and fundraisers ever since. The progress we have seen in Aspen's lifetime is tremendous. We will never forget the day of his diagnosis when his doctor, said one important word - "BUT". "CF is a terrible, life-shortening disease BUT..." She then explained the progress of the CF community and how a miracle drug would be available for Aspen in 5 - 10 years. Sure enough,

8 years later, Aspen began taking Trikafta. Today, Aspen is 10 years old and is living a full life thanks to generous people like you who helped to bring him Trikafta. Aspen has faced many complications over his lifetime - from annual hospitalizations, hundreds of pills a week, hours of treatments a day, and so much more. He does all of this and more every day, despite taking Trikafta. Our family is fighting for a CURE for CF and will not stop until CF stands for Cure Found.

While significant progress has been made in the CF community, there is still much work to be done. A wise CF mom once told me that people love to support the "winning team" and that is exactly what the CF Foundation is. Finding a cure for CF is the best story in medicine. We are so incredibly proud of how far we've come and recognize that we have so much more to do.

Trikafta has been a game-changer for those with CF. I have grown to know and love so many people with CF through my career in cystic fibrosis. I am so grateful for how well Aspen has done on this drug so far, but we have also seen the grim reality of how fast everything can change. Trikafta is not a cure and still comes with many battles and barriers to staying well. We are in this fight until a CURE.

Today, we realize that it is on the shoulders of giants that we stand, knowing full well that they have paved the way to hope—remaining perseverant despite what felt impossible. You, our dear friends, family, colleagues, and classmates are giants to us in this fight. For the incredible people who came before us and for those who are yet to come, we know that together we are writing the final chapter of the best story in medicine.

JOIN US in our fight. Persevere with us to the finish line. We invite you to walk with us on May 18th at Great Strides Atlanta in Suwanee Georgia. We can't wait to see you there.