This is our 14th year of participating in Great Strides, the event that raises so much money for the Cystic Fibrosis Foundation - the 14th year of supporting our grandson, Caleb. He is growing into such a fine young man. He continues to do exceptionally well for a young man with such a disease.
It can be easy to think that the designer drugs (Trikafta is Caleb's drug) have helped the medical community "whip" this disease - but nothing can be further from the truth. A couple of months ago, Caleb came down with a common cold and developed a common cough. Now, you and I could go get some NyQuil, or maybe get a strong cough medicine or some cough drops to help - Caleb cannot do that because he needs to cough. He ups his vest treatments and inhalers to 4 times a day vs 2. I digress. This problem went on for about six weeks. Caleb suddenly, while in school, felt like he couldn't breathe and his heart was racing. He went to his pediatrician, who sent him to the emergency room, and wound up getting two bags of fluids because of dehydration - which is a direct result of CF.
So, we need to keep raising money!
Below is the update from our daughter, Erin.
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Join the Sprinkle Family as we celebrate our 14th year of taking Great Strides toward a CURE for CF!! We are closer to a cure than ever before - come walk with us and be part of the miracle! Join us on Saturday, May 18th for my favorite day of the year!!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. We walk for them. We walk for CALEB. Come join us!!
Check out this video about living with cystic fibrosis and to get a preview of Great Strides: https://vimeo.com/199934500?fbclidIwAR0vB9j3_lxwV5lek0XvkFzidbJ6n3_wQivVJ1UJ0PfQroFtpqhj2nWtiN8
Read our story in Children's Healthcare of Atlanta's Small Wonders publication: http://childrensatl.uberflip.com/i/742218-small-wonders-community-report-2016/0?m4
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Come join us, if you can. Help us out with a little cash. Any amount is super and is appreciated by the Sprinkle family.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.