Barbara D'Agostino

My Great Strides Story

Most of you know that my daughter, Emma Hope, was born with cystic fibrosis, a genetic disease that affects the lungs, pancreas, sinuses, and intestines. To stay healthy, she has to spend at least an hour a day inhaling medications to break up the thick mucus in her lungs and to keep the bacteria that have lived there for almost 30 years under control.  She also take dozens of daily pills, takes insulin injections throughout the day for her CF-related diabetes, and spend lots of time doing her "second job" tracking down doctors, prescriptions, appointments, and insurance. 

We are very thankful that Emma has so many treatment options available to keep her healthy - many of them developed in her lifetime!  There is currently no cure for cystic fibrosis.  The symptoms can vary from person to person, and as people with CF live longer than ever before, their disease can become more complicated, leading to serious health issues.  

By participating in Great Strides, I am helping to end this disease for thousands of people impacted by CF.

The Cystic Fibrosis Foundation has made extraordinary progress — including fostering the development of more than a dozen CF treatments — but these treatments are not a cure and not everyone can benefit from them.  We must keep going.

Your support makes a difference.

By donating to my fundraising goal, you will help advance our mission for a cure for all. Please consider joining us and helping make CF stand for Cure Found.