Please join me while I walk to support my cousin, Makenzie. Makenzie is 23 years old and has Cystic Fibrosis. Cystic Fibrosis is a progressive, genetic (or inherited) disease that causes the body to produce thick, sticky mucus in the lungs and pancreas. This can make it hard to breathe or digest enzymes from food. People with CF find it hard to gain weight, are easily susceptible to infection, and are constantly coughing. Did you know that in the United States alone more than 30,000 people are living with Cystic Fibrosis with about 1,000 new diagnoses each year? Since CF is a genetic disorder it manifests differently from person to person. Treatment plans must be made on an individual basis based on the severity of each person's symptoms. Sometimes people spend hours a day performing airway clearance, taking medications (inhaled, antibiotics, enzyme supplements, or CFTR modulators). This is time consuming and very expensive. Did you know there are about 130 Cystic Fibrosis Care Centers nationwide? Some people must travel to receive appropriate medical care. My hope is that I've given you a glimpse into the life of someone who has Cystic Fibrosis.
Makenzie is a junior at Texas Woman's University studying Education with an English Second Language certificate and a minor in communication sciences. She already has an associate's degree in sign language interpretation. Makenzie does not let CF define her or limit her success. Despite her diagnosis, she is dedicated to helping others.
As you know, many scientific discoveries have been made in recent years, allowing people with Cystic Fibrosis to live longer, healthier lives. These discoveries have been possible thanks to donations from people like you. Please join me in walking, donating, or volunteering for the Cystic Fibrosis Foundation! Any help is greatly appreciated. Thank you!
*One day CF will stand for Cure Found*
Join our team and help us get one step closer to a cure for cystic fibrosis!
For too long, cystic fibrosis, a rare, genetic disease, has robbed people of tomorrows - progressively limiting their ability to breathe and tragically shortening life. There are approximately 30,000 Americans living with CF. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day in the face of this devasting disease. We walk in Great Strides for them.
Will you join us?
Great Strides is a fun event that provides a fantastic opportunity for family, friends, students, and colleagues to come together to make a difference in the lives of people with CF.
To participate, just click on the "Join our Team" button. From there, you can make a donation and start fundraising.
By joining our Great Strides team and making a donation, you will be part of a tenacious and passionate group of people committed to ending this disease. Together, let's make CF stand for Cure Found!
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.