It takes hours of treatments and handfuls of meds each day for those with CF to 'just breathe'. We walk / run for them because WE CAN. WILLYOU JOIN US?
Our daughter, Katie, lives with CF. 2019 was a very exciting year for Katie! Since Katie was little, we have watched her begin each day with such positivity, kindness and a drive to give back to those who have been in her life: her family and friends, her caregivers at Cardinal Glennon Children's Hospital, Barnes and to all those who live with a chronic illness. She has accepted the challenge of ilving with CF. However, CF does not define Katie; rather Katie lives with CF. It is just a part of her journey. She has never turned down a challenge. But as her parents, we will work tirelessly to help make this part of her journey more of a glide downhill.
Last year I wrote, "By the end of 2019, a drug is targeted to be on the market whcih will help 93% of the CF gene mutations." Well, it happened! 2019 will go down as one of the best years in Katie's life!
2019 saw Katie graduate with her Master's in Social Work from the Brown School of Social Work at Washington University in St. Louis, secure her position in Counseling at SIU-E, marry the love of her life, Tyler, and begin Trikafta!
We are not stopping now...WE WILL NOT STOP UNTIL THIS IS DONE!
But WE NEED YOU to help us with spreading the work...spreading awareness...and fundraising your dollars for research to continue at this much quickened pace.
There are approximately 30,000 Americans living with CF. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. I walk for them and hope you will support me in my efforts.
Real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. There still is no cure for this devastating disease. By joining our team and donating today, you are helping add tomorrows to the lives of those living with cystic fibrosis. Will you join me? Support CF by making a donation today! OR, even better, JOIN our Team RUN FOR ROSES and spread awareness to your friends and family.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
PLEASE help us! Your gift will help add tomorrows to the lives of people with CF by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.
To become a member of our team RUN FOR ROSES just click on the "Join our Team" button. One click of the button and you will begin to make a HUGE difference, spreading awareness and helping those with CF 'breathe easier'.
Thank you for always supporting us and our efforts, for your donations and most importantly for being great friends, without whom we could not do this. Please continue your prayers for that healthier life and finally that CURE for CF!
THANK YOU for joining Team Run for Roses and running, walking (or virtual walking) with us on our PATH TO A CURE!
Share our story with your friends and family and help us continue to spread awareness!
We are ...Running 'til CF stands for Cure Found!... The Caul Family
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.