It takes hours of treatments and handfuls of meds each day for those with CF to 'just breathe'. We walk / run for them because WE CAN. WILLYOU JOIN US?
Our daughter, Katie, lives with CF. I watch her begin each day with such positivity, kindness and a drive to give back to those who have been in her life: the caregivers at Cardinal Glennon Children's Hospital, Barnes, her family and friends and to all those who live with a chronic illness. She has accepted the challenge of ilving with CF. CF does not define Katie; rather Katie has given a new definition to living with CF. I think it is her bump in her road, her journey. She has never turned down a challenge or a 'bump'. But as her mom, I want to work til I die to help flatten that bump... Perhaps even give her some time where her journey will be gliding downhill.
Thhis year promises to help that a bit. By the end of 2019, a drug is targeted to be on the market whcih will help 93% of the CF gene mutations. Katie's gene mutation will finally be elligible for a drug treatment which will help her lungs!!
To become a member of our team RUN FOR ROSES just click on the "Join our Team" button. One click of the button and you will begin to make a HUGE difference, spreading awareness and helping those with CF 'breathe easier'. Any donation is appreciated! With a minimum donation of $30 you will also receive our Team Run for Roses short sleeve team shirt; with a minimum donation of $65 you will receive our long sleeve 1/4 zip tech team shirt!!
Katie, the inspiration for Run for Roses, now 24,ran her 2nd marathon this January! Katie is in her first year of graduate school for social work at Washington University in St. Louis, where she plans to specialize with kids with chronic illnesses. Katie's daily routine starts and ends with treatments: breathing, airway clearance and antibiotics to prepare her for her full day. Running is also incorporated into her busy schedules to facilitate good lung functioning.
That is where all this comes in! WITH YOUR SUPPORT, OU HELP GIVE THOSE WITH CF A HEALTHIER LIFE! Thank you for always supporting us and our efforts, for your donations and most importantly for being great friends, without whom we could not do this. Please continue your prayers for that healthier life and finally that CURE for CF!
THANK YOU for joining Team Run for Roses by making a donation or being a runner, walker or virtual walker. Share our story with your friends and family and help us continue to spread awareness!
We are ...Running 'til CF stands for Cure Found!... The Caul Family
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.