Welcome to The A Alliance! The A is for Anders! He is our resilient, energetic, animal loving 4 year old who happens to have Cystic Fibrosis! Anders was diagnosed following an abnormal newborn screen and a whole lot of testing. Because of him, we are wild about a cure!
Why do we participate in Great Strides and why do we fundraise for the Cystic Fibrosis Foundation? Well, Anders has a rare mutation. That means that when he was born, there were no treatment options for him. Thanks to the funding and the work of CFF, he now has a treatment option for his mutations! They have worked hard to increase both quality and quantity of life, giving those with CF a better chance to be able to finish school, go to college, get married, start families, and so much more! Now, CF is not just a disease of childhood as more and more people live to 30, 40, 50 years and beyond!
We continue fighting alongside as they work towards a treatment for all (about 10% still do not qualify for current treatments) and one day a cure. We won't stop until it is done for all!
We ask for you to join us! Whether that looks like joining our team or donating to a team member! Help make CF stand for CURE FOUND!
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.