Our team is driven by a dream that one day, every person with cystic fibrosis will have the chance to live a long, healthy life. You can help us reach that goal!
Our Great Strides Story
Kamila Rose was a beautiful and healthy baby at birth. But 2 weeks after we found out she had an abnormal newborn screening for Cystic Fibrosis. I asked the nurse if it was serious. She sadly responded, "Yes and we needed to see the Pulmonologist at Children's Hospital ASAP". My heart sank... I felt helpless & scared.
Every day we do an hour of Chest Physical Therapy (CPT). This is an airway clearance "Clapping" all around her lungs to help drain the sticky mucus. This mucus causes chronic, life-threatening lung infections associated with cystic fibrosis. Once she's big enough, she will be upgraded to a vibrating vest.
Today I feel hopeful because of The Foundation's extraordinary progress in developing over a dozen CF therapies. But these treatments are not a cure, we must keep going!
Join our team 'Kamila's Krew' to help make a difference in the lives of all people living with CF. To become a member, click the "Join this team" button. From there, you can donate and start fundraising if you choose. Or just come and support her :)
IF YOU'D LIKE A TEAM SHIRT, CLICK BELOW. (either ship direct to you, or group shipping and I'll pass our on Walk day)
https://www.bonfire.com/store/kamilas-krew/
As a member of our team, you are joining a growing community of people committed to finding a cure for cystic fibrosis. Together, we can make CF stand for Cure Found.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.