For anyone that doesn’t know, Harrison was born with a disease called Cystic Fibrosis (CF). CF is a progressive, genetic disease that affects the lungs, pancreas, and other organs. While Harrison knows that he has CF, he doesn’t fully understand how serious the disease is because he is only 9. He knows he does a lot of extra things to keep him healthy that others don’t do. To give you a glimpse of his daily life: He does a vest twice a day for 30 min each to shake the mucous in his lungs, he does a nebulizer medication once a day to thin the mucous in his lungs. He has to take pancreatic enzymes before he eats anything, otherwise he will not absorb any of the nutrients he consumes. He also has a feeding tube in his belly to give him special formula at night. I only tell you this because just looking at him, you would never know. He is a happy kid and all of this is just normal to him.
Real progress has been made for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short. We’ve come so far, but there’s still so much work to do. I will not stop striding until all those with cystic fibrosis have a cure. We will not leave anyone behind.
Will you join us?
Great Strides is a fun event that provides a fantastic opportunity for family, friends, students, and colleagues to come together to make a difference in the lives of people with CF.
To participate, just click on the "Join our Team" button. From there, you can make a donation and start fundraising.
By joining our Great Strides team and making a donation, you will be part of a tenacious and passionate group of people committed to ending this disease. Together, let’s make CF stand for Cure Found!
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.