We would love for you to join our team and help raise money for Cystic Fibrosis! Hadley's journey has been a unique one. With all the funds donated to date it has helped with things like newborn screening and early detection. Because of this Hadley's mutations we caught at birth and treatment started within the first few weeks of life. All the treatments that she receives are all due to the funds received for research! Life is so much different for her compared to those before her. At is is a progressive disease these are interventions that are extending life expectancy of our KIDDOs. Not to mention the biggest and best medication for those with mutations similar to Hadleys is wrapping up with FDA approval for 2 and up this month! This is why we work so hard to raise money for research and won't stop until there is a cure!
For too long, cystic fibrosis, a rare, genetic disease, has robbed people of tomorrows – progressively limiting their ability to breathe and tragically shortening life. There are approximately 30,000 Americans living with CF. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day in the face of this devasting disease. We walk in Great Strides for them.
Will you join us?
Great Strides is a fun event that provides a fantasticopportunity for family, friends, students, and colleagues to come together tomake a difference in the lives of people with CF.
To participate, just click on the "Join our Team"button. From there, you can make a donation and start fundraising.
By joining our Great Strides team and making a donation, youwill be part of a tenacious and passionate group of people committed to endingthis disease. Together, let’s make CF stand for Cure Found!
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.