Did YOU know…there are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, and friends who struggle every day just to breathe.
It's hard to believe we have been blessed with 7 years of good health and great adventures with our spunky little Miss Grace and we even through the troubled times of the COVID pandemic!
We are super excited to meet IN PERSON at the walk again this year! Mark you calendar for May 15th at SIUE. We also will have some fun family festivities at our house after the walk TBD closer to the date!
As most of you know or can witness through pictures...Grace is our hard headed little girl with a "do it herself" attitude, she keeps us all on our toes and never a dull moment. We try to make her day as normal as possible, even though she gets up almost an hour earlier every day to do her vest therapy and is consuming around 36 pills each day with meals, snacks and supplements. We are impressed with her ability to down 7 pills at a time before I can even get her a drink to wash it down. Vest therapy again in the evening, sometimes with added nebulizer treatment from her friend "Sami the Seal." She takes her routine like a champ. This is just the extra that our family deals with and it will continue to be our life until we find a cure for those living with cystic fibrosis.
Grace started taking Trikafta (the wonder drug for CF) this past fall...it is still early to see dramatic change because we have been blessed with realtively good health already but we pray that with this amazing medication that we will continue without decline in function and her body could potentially work like a "normal" non CF person at some point down this crazy road of life!
The Cystic Fibrosis Foundation is an amazing organization which has made tremendous progress over the years through research and development with medications and treatments for those who have CF. Because of the Foundation and support from people like YOU...Grace and her fellow CFers are making history! BUT there is still no cure for this devastating disease. We’ve come so far, but there’s still so much to do. Together, we can make CF stand for Cure Found.
Please support Grace and all those families impacted by CF. We invite you to make a donation and help us raise funds to support the CF Foundation’s mission of finding a cure and improving the lives of all those living with CF.
Love, Tyler, Kari, George & Grace Unterbrink
How you can donate: -Online from this site (PREFERRED) http://fightcf.cff.org/goto/gracesgang -Join our team and start your own fundraising! -Send a check to Kari @ 5866 Unterbrink Rd, Moro, IL 62067, made payable to Cystic Fibrosis Foundation (CFF)
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.) NOTE: For events hosted by the CF Foundation, masks will be made available on-site, when possible.
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Certain CF Foundation events may require vaccination to attend.
Participants are strongly encouraged to test within 24 hours prior of arrival at an event or meeting, or as close as possible to the time of departure (if traveling).
Please be advised certain events, localities, and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
For events where the CF Foundation requires full vaccination, meeting participants must be fully vaccinated against COVID-19 at least two weeks before the date on which you will first attend the meeting. Registration and attendance at such events may require agreement to health and safety protocols and/or COVID liability waivers.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you test positive, or have been recently exposed to COVID-19.
We cannot guarantee that all people present at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.