Our Great Stride's Story
In April of 2022, our family welcomed a beautiful little girl into the world. She had trouble gaining weight and we very quickly found out that her newborn screening indicated two rare CF mutations. Our baby girl had Cystic Fibrosis. This was new to us and we immediately started researching. The internet is a scary place!
After we met with our CF team we were encouraged at the new advancements in medicine and we were able to see a future for our baby. We learned that most of these advancements were due to the CF foundation. We are so thankful to the parents that came before us and those that fundraised for our little one. She will have a bright future because of them.
Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. They are moms, dads, sisters, brothers, daughters, sons, and friends who face the sobering prospect of a shortened lifespan. I walk for them.
Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.
You can support us!
By supporting our fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history.