As you all know, our daughter, Katie, lives with CF. Her positivity was evident since she was a wee little one of age 3 years. Katie's smile lights up her dimples and her kindness and sensitivity for others feeds her drive to give back to those who have been there for her throughout her young life: her family and friends, her caregivers at Cardinal Glennon Children's Hospital, Barnes and to all those who live with a chronic illness. CF is a small part of Katie amidst her amazing qualities. She dreams big and meets all the challenges and goals she sets for herself. Throughout her adult life, Katie practices as a Licensed Clinical Social Worker in her own private practice, The Loom Therapy Practice. She is specializing in working with college students, LGBTQIA+ individuals, those with chronic illnesses and disabilities, and those who are grieving. Katie believes "that we are all interwoven and need supportive relationships to learn about ourselves, others, and the world. This belief is deeply connected to our Rose Foundation community. While CF can be an isolating disease because of the infection control guidelines for those with CF, I never felt alone. My family and this community has always been there for me and I have always felt so surrounded by love."
Katie has become involved with a number of projects for the CFF and mental health. She has been a CF Peer Mentor. Over the last year, Katie worked with a group of researchers, adults with CF and parents of individuals with CF to review community and provide surveys to assess CF mental health research priorities. Katie has also been invited to join a few upcoming research projects, pending funding, related to mental screenings and evaluations, as well as invited to be one of the founding members for a mental health research working group to help address some of the key research questions around mental health and CF.
As CF research, medications and services become better and better, providing a higher quality of life for those living with CF, the mental health of of living with a chromic illness becomes more and more important. YOU can be a part of making everyday life a little easier for someone with CF.
As Katie's parents, we will work tirelessly to help make her journey and the journey of other CFers easier by spreading awareness and raising funds that will develop better treatments, meds and fund a CURE FOR CF.
WE WILL NOT STOP NOW UNTIL THIS IS DONE...UNTIL THERE IS A CURE!
We are humbly asking for your help. WE NEED YOU to PLEASE join us and help by spreading awareness and raising the funds...making our dollars work hard on research to provide new treatments, drugs and finally a cure.
There are approximately 30,000 Americans living with CF. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. I walk for Katie and for them and hope you will support me in my efforts.
By joining Team RUN FOR ROSES / KATIE'S KLAN TODAY, you are helping add tomorrows to the lives of so many.
Your gift is 100% tax deductible.
With deepest gratitude,
Linda & Jeff
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
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