I found out my little Aleks had Cystic Fibrosis when I was about 26 weeks pregnant. She presented with a meconium ileus and after genetic testing, and a sweat test, it was confirmed. Aleks had surgery at less than 24 hours old to remove part of her small intestine. Since she was born she has had 2 major surgeries due to her CF and 5 additional from her secondary diagnoses; cerebral palsy.
Aleks does two-30 minute vest treatments each day, does nebulizer treatments when needed, takes enzymes and pre digested formula through her feeding tube at every meal and overnight, relies on vitamins, salt, and other medications to keep her healthy, does physical therapy 3 times per week, and started trikafta this past year which she takes twice daily.
Aleks is without a doubt, the toughest person I know and she still manages to be incredibly playful and caring on top of it. She is fun, friendly, has the best giggle, loves to swim, paint, watch TV and horseback ride. She is doing great in kindergarten this year!! She loves her dogs and likes to keep up with her big sister, June, who she listens to and looks up to more than anyone else. I could go on and on about all the things that make her so amazing, but I know, the treatments she gets help make it possible.
Aleks is a fighter. She has a team of caregivers always behind her willing to help in any way they can. By joining the team or donating, you are showing that you too are there for her. It is hard work and takes an army, but she doesn't hesitate to keep going and neither will I. Please consider joining in support of us. We strongly believe in the work and treatments that the Cystic Fibrosis Foundation has done and it is because of this foundation that we are getting closer to a cure!
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