Support Grace’s Gang and Help Add Tomorrows!
Did YOU know…there are approximately 40,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, and friends who struggle every day just to breathe.
It's hard to believe we have been blessed with 9 years of good health and great adventures with our spunky little Miss Grace!
Mark you calendar for May 5th. Walk is at the Watershed Nature Center in Edwardsville. Registration fun starts at 10:00 & walk starts at 11:00 am.
We also will have some fun family festivities at our house following the walk...so come out and join us even if you don't walk.
As most of you know or can witness through pictures...Grace is our hard headed little girl with a "do it herself" attitude, she keeps us all on our toes and never a dull moment. We try to make her day as normal as possible, even though she gets up almost an hour earlier every day to do her vest therapy and is consuming around 36 pills each day with meals, snacks and supplements. We are impressed with her ability to down 7 pills at a time before I can even get her a drink to wash it down. Vest therapy again in the evening, sometimes with added nebulizer treatment from her friend "Sami the Seal." She takes her routine like a champ. This is just the extra that our family deals with and it will continue to be our life until we find a cure for those living with cystic fibrosis.
Grace is still taking Trikafta (the wonder drug for CF)...we pray that with this amazing medication that we will continue without decline in function and her body could potentially work like a "normal" non CF person at some point down this crazy road of life!
The Cystic Fibrosis Foundation is an amazing organization which has made tremendous progress over the years through research and development with medications and treatments for those who have CF. Because of the Foundation and support from people like YOU...Grace and her fellow CFers are making history! BUT there is still no cure for this devastating disease. We’ve come so far, but there’s still so much to do. Together, we can make CF stand for Cure Found.
Please support Grace and all those families impacted by CF. We invite you to make a donation and help us raise funds to support the CF Foundation’s mission of finding a cure and improving the lives of all those living with CF.
Love, Tyler, Kari, George & Grace Unterbrink
How you can donate:
-Online from this site (PREFERRED)-Join our team and start your own fundraising!-Send a check to Kari @ 5866 Unterbrink Rd, Moro, IL 62067, made payable to Cystic Fibrosis Foundation (CFF)
Join our team and help add tomorrows!
Connect With Us
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.