Chase continues to thrive since starting Trikafta. His PFTs are consistently at 109% and he continues to grow without supplements. Your donations over the past 18 years since our family started on this mission have helped make this difference. Here are just some of the differences your donations have made in Chase’s life.
Chase goes to CF clinic every 3 months (and has since birth). They check his lung function, swab to check for bacteria in his lungs, listen to his lungs and do the typical checkup, check his weight and height and monitor his BMI. A typical visit lasts 2-3 hours because he has to see the nurse, his doctor, the respiratory therapist, and occasionally his pharmacist, social worker, counselor, and dietician as they rotate visits. Clinic days used to be stressful. Not only due to the length of the visit, but there was always the fear when they took him for PFTs...would the number be "high" enough, would the doctor think his function slipped too much? The constant worry was always there. There were several visits where they thought they were just going in for clinic and based on the PFTs or lung issues the doctor would end up admitting Chase straight to the hospital.
Since starting Trikafta the "fear" of clinic is gone. There is no stress involved anymore. This means a lot not only to Chase’s physical well-being but also his mental health and that of his parents and siblings. With Trikafta he's thriving and feels good all the time. No more baseline cough, no more fear of PFTs not being good enough, no more fear of unforeseen hospital stays! Clinic visits are just check ins now and it's amazing!
Trikafta has been a miracle for Chase, but he's not cured. He still takes between 35-40 pills per day, does his vest twice a day for 30 minutes each time, as well as inhale his medicine with a nebulizer. Please help us fund the research to keep working towards a cure!
Please support me!
We are at a pivotal moment in the history of cystic fibrosis and your support matters. With your help, we can invest our resources in research today, while raising funds for tomorrow, to ensure we have what it takes to reach the finish line. Together, we can make CF stand for Cure Found. Please help me reach my fundraising goal!