It takes hours of treatments and handfuls of meds each day for those with CF to 'just breathe'. We walk / run for them because WE CAN. WILLYOU JOIN US?
Our daughter, Katie, lives with CF. Since Katie was little, we have watched her begin each day with such positivity, kindness and a drive to give back to those who have been in her life: her family and friends, her caregivers at Cardinal Glennon Children's Hospital, Barnes and to all those who live with a chronic illness. She has accepted the challenge of ilving with CF. However, CF does not define Katie. It is just a part of her journey. She has never turned down a challenge. But as her parents, we will work tirelessly to help make her journey easier so she is able to fulfill all of her dreams.
In early 2019 I wrote, "By the end of 2019, a drug is targeted to be on the market whcih will help 93% of the CF gene mutations." Well, it happened! 2019 will go down as one of the best years in Katie's life!
2019 saw Katie graduate with her Master's in Social Work from the Brown School of Social Work at Washington University in St. Louis, secure her position in Counseling at SIU-E, marry the love of her life, Tyler, and begin Trikafta!
2021 saw Katie receive her LIcense in CLincal Social Work and open her private practice, The Loom Therapy!
WE WILL NOT STOP NOW UNTIL THIS IS DONE and there i s a CURE FOR CF!
But WE NEED YOU to help us with spreading the work...spreading awareness...and fundraising your dollars for research to continue at this much quickened pace.
There are approximately 30,000 Americans living with CF. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. I walk for them and hope you will support me in my efforts.
By joining our team and donating today, you are helping add tomorrows to the lives of those living with cystic fibrosis. Will you join us? Support CF by making a donation today! OR, even better, JOIN our Team RUN FOR ROSES / KATIE'S KLAN and spread awareness to your friends and family.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
PLEASE help us! Your gift will help add tomorrows to the lives of people with CF by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.
To become a member of our team RUN FOR ROSES / KATIE'S KLAN just click on the "Join our Team" button. One click of the button and you will begin to make a HUGE difference, spreading awareness and helping those with CF 'breathe easier'.
Thank you for always supporting us and our efforts, for your donations and most importantly for being great friends, without whom we could not do this. Please continue your prayers for that healthier life and finally that CURE for CF!
THANK YOU for joining Team Run for Roses / KATIE'S KLAN and running, walking (or virtual walking) with us on our PATH TO A CURE!
Share our story with your friends and family and help us continue to spread awareness!
We are ...Running 'til CF stands for Cure Found!...
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.) NOTE: For events hosted by the CF Foundation, masks will be made available on-site, when possible.
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Certain CF Foundation events may require vaccination to attend.
Participants are strongly encouraged to test within 24 hours prior of arrival at an event or meeting, or as close as possible to the time of departure (if traveling).
Please be advised certain events, localities, and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
For events where the CF Foundation requires full vaccination, meeting participants must be fully vaccinated against COVID-19 at least two weeks before the date on which you will first attend the meeting. Registration and attendance at such events may require agreement to health and safety protocols and/or COVID liability waivers.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you test positive, or have been recently exposed to COVID-19.
We cannot guarantee that all people present at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.