Hi everyone! And welcome to the page of GT’s Pit Crew!
This page is a work in progress… check us out soon for updates for 2024!!
I truly would not be here if it wasn't for technology and science progressing for the better. And the CF Foundation utilizes its donations to help us in SO many ways. It's because of YOU, truly, and I don't say that in that cheesy cliche way.. I mean it. And I'm forever in debt to all that support me year after year.
I'm dedicating this year to those who are underdogs just like I am. To those of us who have sat on the sidelines for far too long.. This year is a pivotal year when it comes to Cystic Fibrosis awareness and research! Phase 1 trials are starting for Genetic Therapies! While these will help everyone without bias to certain gene mutations.. this is a huge step for those of us with rare mutations that could not benefit completely from modulators!
We are also making headway when it comes to antibiotic resistance! Phage therapy trials have shown significant progress for those of us who have hard to treat infections! With phage therapy - an entire new layer of stability could be given to those struggling!!
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Save the date: May 18th, 2024!
We will be there about 9am! I will update closer to the event.
Where: Fenton City Park
1215 Larkin Williams Rd. Fenton, MO 63026
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To learn more about Cystic Fibrosis, please visit: www.cff.org
To learn more about Celiac Disease, please visit: www.celiac.org
To learn more about my autoimmune components please visit: www.lupus.org
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, and friends who struggle every day just to breathe. I walk for them. I am SO happy to also announce that for the FIRST time in CF history, we have MORE adults than children with CF. It's solely due to the progress that has been made in research.
Will you join me and support my fundraising goal? Real progress has been made for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short. We’ve come so far, but there’s still so much work to do. I will not stop striding until all those with cystic fibrosis have a cure. We will not leave anyone behind. We are at a pivotal moment in the history of cystic fibrosis and your support matters. With your help, we can invest our resources in research today, while raising funds for tomorrow, to ensure we have what it takes to reach the finish line. Together, we can make CF stand for Cure Found. Please help me reach my fundraising goal!
Your donation is 100% tax deductible!
Please support me, and a cure once and for all.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.