Ashlee Wilhite

My Great Strides Story

Kamila Rose was a beautiful & healthy baby at birth. But 2 weeks after we found out she had an abnormal newborn screening for Cystic Fibrosis.  I asked the nurse if it was serious.  She sadly responded, "Yes & we needed to see the Pulmonologist at Children's Hospital ASAP".  My heart sank... I felt helpless & scared. 

Kamila began taking pancreatic enzymes sprinkled on apple sauce with EVERY feeding. CF affects her digestive system by preventing the breakdown of food for proper absorption of nutrients.  The enzymes assist with the breakdown, allowing her to develop at a better rate. 

Every day we do an hour of Chest Physical Therapy (CPT).  This is an airway clearance "Clapping" all around her lungs to help drain the sticky mucus.  This mucus causes chronic, life-threatening lung infections associated with cystic fibrosis.  Once she's big enough, she will be upgraded to a vibrating vest. 

Please help us continue to raise funds for the research programs that are developing new & effective CF therapies.  And ultimately find a cure for Cystic Fibrosis. 

WANT A TEAM SHIRT: (ships direct or grouped and I can give to you)

https://www.bonfire.com/store/kamilas-krew/?utm_source=copy_link&utm_medium=store_page_share&utm_campaign=kamilas-krew&utm_content=default