Caren Crase

My Great Strides Story

Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. They are moms, dads, sisters, brothers, daughters, sons, and friends who face the sobering prospect of a shortened lifespan. I walk for them.

Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.

In 1970 there wasn't much information out about CF and sadly my sister passed at the tender age of 5 months. In 1972, I was born, my parents were told I wouldn't see my 4th Birthday!Well through the years of fundraising and research there have been many new medicines, therapies and treatments. I have been one of those who have participated in those studies and benefited from the research. Trikafta came out in 2019, I started on it in November of that year. I've gone from 3-4 hopitalizations a year to 3 in 5 years. I have been on numerous oral antibiotics but it beats iv's!! I will be turning 52 in June! This has all been made possible by donations by people like YOU, so from the bottom of my heart THANK YOU!

You can support me!

By supporting my fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history.