Join our team and help us get one step closer to a cure for cystic fibrosis!
For too long, cystic fibrosis, a rare, genetic disease, has robbed people of tomorrows – progressively limiting their ability to breathe and tragically shortening life. There are approximately 30,000 Americans living with CF. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day in the face of this devasting disease. We walk in Great Strides for them.
Will you join us?
Great Strides is a fun event that provides a fantastic opportunity for family, friends, students, and colleagues to come together to make a difference in the lives of people with CF.
To participate, just click on the "Join our Team" button. From there, you can make a donation and start fundraising.
Our beautiful baby boy, Luca was diagnosed with CF when he was just two weeks old. Obviously this is news no parent wants to hear. This was a devastating call for us and it took a very long time to accept this diagnosis. We brought him home as a seemingly healthy baby and soon found out our sweet little boy was very sick. Now, two years later, we are so so grateful to have a thriving, full-of-life, and wild toddler boy. No matter what he goes through on a daily basis you will never catch this boy without a smile.
2019 was an amazing year for CF research with the FDA approving the three drug combo, Trikafta. It is said to be the biggest advancement in modern medicine, BUT it only treats the underlying cause of cystic fibrosis for 90% of the CF community. 90% is amazing and we are fortunate that Luca is one of those that will benefit from Trikafta, but there is still 10% waiting for their miracle. We will not stop striding until we find a cure for 100% of those living with cystic fibrosis. In January 2021, we got amazing news when they announced that Trikafta was accepted by the FDA for the approval process for the 6-11 age range. We should know by June 2021 if it is approved. This is HUGE!
We became involved with Great Strides in 2019 shortly after Luca's diagnosis in August of 2018. Our amazing team of friends and family helped make our team a wonderful success and we were named the Top Rookie Fundraisng team by our chapter for the year. 2020 hit everyone like a ton of bricks, but it didn't stop us from going virtual for the cause and raising a whopping $18,962 for the year! We could not do it without the amazing team of Gladiators we have surrounding Luca. Every dollar is one step closer to a cure for CF!
We can not thank you enough for your continued support to the cause!
For too long, cystic fibrosis, a rare, genetic disease, has robbed people of tomorrows - progressively limiting their ability to breathe and tragically shortening life. There are approximately 30,000 Americans living with CF. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day in the face of this devasting disease.
I walk for them. Will you join me and support my Great Strides fundraising goal?
Real progress has been made for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short.
By walking with me in Great Strides, you can help accelerate the Foundation's pursuit of new therapies and provide vital support to meet the needs of the CF community.
Your participation will help us get one step closer to ending this terrible disease. Let's make CF stand for Cure Found.
By joining our Great Strides team and making a donation, you will be part of a tenacious and passionate group of people committed to ending this disease. Together, let’s make CF stand for Cure Found!
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.