This year, we have so much to be grateful! Josh graduated from the University of Tampa after 3 ½ years of hard work and is beginning his new career. Jess, also now residing in Tampa, works for The Collective Genius doing Marketing. Michael rose to the Captain of his tennis team and continues to diligently mow the lawn between serves! Lacey, our 4-legged daughter – well she excels at what she does best…Absolutely nothing!! Health & Happiness…that makes for a beautiful life!
Living with cystic fibrosis has been transformative for our family this past November, with the F.D.A.’s early approval of a magical drug called Trifakta. This medicine, which Jessica was so fortunate enough to begin a few days after her 25th birthday, was a dream come true! This triple combination therapy corrects the underlying cause of this disease for 90% of the patients. Miracles DO happen!
However, just this past week, we lost another beautiful soul to this ravaging disease. Erin was just 25 years old, the same age as Jess. I met her at last year’s walk-a-thon. By that time, Jessica and Erin had already established a very special kinship! Her health deteriorated over the year. Her fight ended tragically waiting for a lung transplant. Words can’t describe the extreme sorrow we feel for her family.
In memory of Erin, and all of those still fighting for their lives, we are asking you to continue supporting the Cystic Fibrosis Foundation as we move towards the ultimate goal when CF finally stands for CURE FOUND!
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.