Hi everyone! I can't believe this will be our third year for great strides! Olivia is now 3 and as wild as ever! We keep her busy though! She's in gymnastics,dance and she goes to school two days a week! She's also a Disney fanatic and wakes up every day,dresses up as a Disney character and will be the first to correct you if you call her the wrong Disney princess! This was her first year ever that she has been hospital free! She does her treatments and her vest to help prevent her from getting sick! She can even tell you the medication she takes in her nebulizer! She also swallow multiple pills by herself! It's crazy how smart she is! There is so much hope in the years to come!
Olivia had a rough start in the beginning at 3 days old Oliva was going into her first surgery on her bowles due to a meconium ileus and shortly after had another 2 surgeries on her bowels! With the surgery I had a scary diagnosis of Cystic Fibrosis. I look back on that day 3 years ago and think about how I would of never thought how we would get to the point where we are today, but here we are! If someone who is reading this feels the same thing, never give up hope, our kids are pretty amazing And strong ! Olivia teaches me to be strong!
Ways you can help:
Donate! The great strides is something that can help families like us! I know a cure is coming too!
Spread the word! I think it's crazy how many people don't know what Cystic Fibrosis is! I always share Olivia's story and spread awareness that way!
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.