My Great Strides Story for Pax
Ryan and Brittany, my brother and sister-in-law, welcomed their first child on May 13th, 2023, making me the proudest aunt for the sixth time!
Pax, my new nephew, was diagnosed with Cystic Fibrosis at the age of 9 days.
Cystic Fibrosis (CF) is a genetic disease that causes a buildup of thick, sticky mucus in the lungs. CF causes ongoing lung infections and makes it hard to breathe over time. CF also affects other parts of the body, including the pancreas, and digestive system.
While there is not yet a cure, (yet, being the key word here!) they have come a long way with treatments and guidance for managing and living with this chronic disease. The CF Foundation has been the driving force behind the pursuit of a cure.
It is now my mission to raise awareness and funding for the CF Foundation in honor of my nephew Pax!
There is currently no cure for cystic fibrosis. By participating in Great Strides, I am helping to end this disease for thousands of people impacted by CF including my newest nephew Pax.
Cystic fibrosis affects the lungs, pancreas, and other organs. The symptoms can vary from person to person, and as people with CF live longer than ever before, their disease can become more complicated, leading to serious health issues.
The Cystic Fibrosis Foundation has made extraordinary progress — including fostering the development of more than a dozen CF treatments — but these treatments are not a cure and not everyone can benefit from them. We must keep going.
Your support makes a difference!
By donating to my fundraising goal, you will help advance our mission for a cure for all. Please consider joining us and helping make CF stand for Cure Found.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.