On November 5, 2021 Noelle was born 6 weeks prematurely via c-section due to a lack of movement and distressed heart rate. She was transferred to a more specialized NICU where it was determined that she needed emergency surgery for a bowel obstruction called meconium ilius. We were informed that this is often an indicator of Cystic Fibrosis. About 10 days later we learned of the diagnosis.
We have learned a lot since the initial diagnosis. Noelle has been through multiple hospitalizations for respiratory issues when sick and bowel obstructions. She receives breathing treatments and chest physiotherapy two times a day, enzymes every time she eats, and a specialized medication called a modulator two times per day. The modulator medications are life changing and only have been made possible through the research supported by the Cystic Fibrosis Foundation. We are so thankful that Noelle will have the opportunity to live a full life because of the advances being made and we will not stop until CF stands for Cure Found!
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, and friends who struggle every day just to breathe. I walk for them. Will you join me and support my fundraising goal?
Real progress has been made for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short. We’ve come so far, but there’s still so much work to do. I will not stop striding until all those with cystic fibrosis have a cure. We will not leave anyone behind.
Please support me!
We are at a pivotal moment in the history of cystic fibrosis and your support matters. With your help, we can invest our resources in research today, while raising funds for tomorrow, to ensure we have what it takes to reach the finish line. Together, we can make CF stand for Cure Found. Please help me reach my fundraising goal!