Hudson was born with a condition called Meconium Ilius. We were told at the time that it was likely that he had Cystic Fibrosis because Meconium Ilius is typically related to Cystic Fibrosis, but we refused to believe this. Alex (dad) and I (mom) were both tested for Cystic Fibrosis genes and I was found to be a carrier and Alex was not. After 12 days in the NICU and multiple procedures, Hudson's Meconium Ilius was resolved and we started him on his first medication, Creon. Something we learned he would now have to take every time he eats to properly digest fats.
When Hudson was 2 months old, he was diagnosed with Cystic Fibrosis. We found out through genetic testing that the gene Alex carries is rare (only found in one other US case) and there isn't any information available on the type of Cystic Fibrosis that Hudson has. Since then Hudson has been to more doctors appointments and had more tests done then we can count.
Although Hudson has had a few hurdles, such as serious liver issues and bacterial pneumonia he is doing tremendously. Everyday we work to help Hudson's body operate and stay healthy and are confident he will continue to grow and overcome the obstacles that he is presented with. We have felt God's hand in all of Hudson's care and know Hudson is going to have an incredible "Glory Story" to share one day.
With that being said, we would love your help to spread awareness about Cystic Fibrosis and raise funds to help find the path to a cure. We now truly know that to breathe well is a gift and with your help we hope to give that life long gift to Hudson.
From the Cysitic Fibrosis Foundation-
There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, and friends who struggle every day just to breathe.
Real progress has been made for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short. We’ve come so far, but there’s still so much work to do. We will not stop striding until all those with cystic fibrosis have a cure. We will not leave anyone behind.
We are at a pivotal moment in the history of cystic fibrosis and your support matters. With your help, we can invest our resources in research today, while raising funds for tomorrow, to ensure we have what it takes to reach the finish line. Together, we can make CF stand for Cure Found. Please help me reach my fundraising goal!
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