My Great Strides Story
Please support me again this year as I walk to raise funds for cystic fibrosis-CF. This beautiful boy Luca is a part of my extended family. I am an "auntie" to his mom since she was born. Luca is a 4 1/2 year old rambunctious little boy with a love of dinosaurs and Disney World. You would never know by looking at his beautiful smile that he is facing the terrible "invisible" disease CF. I will never forget when his mom told us he was diagnosed with it when he was only two days old! He jumped right into a regimen of medicine and breathing treatments like a champ. He never complains or feels sorry for himself, the reality is, he doesn't know any other way of life. He does understand his treatments help him grow big and strong like one of his favorite characters the Incredible Hulk!!
CF is considered a life shortening disease but with the help of medical advancements in the last few years the mean age of survival is now 55 years old whereas when Luca was born it was only mid-thirties! With the help of a new miracle drug combo called Trikafta on the market, people living with CF are thriving. On April 26th it was just announced that FDA approved Trikafta for Luca's age 2-5 and it is beyond thrilling!!! However, while it is a great stride it is only approved for 90% of the CF community.
With your support the CF Foundation funds drug trials, research and immunotherapies that just may bring us closer to a cure in Luca's lifetime so CF will stand for CURE FOUND!!
Please support me when I walk side by side with Luca and his family so we can make medical history!! THANK YOU!!