Cystic Fibrosis is a progressive, hereditary disease that can cause lung infections and limit the ability to breathe. It's a disease that affects roughly 30,000 people in the US and Luca just happens to be one of them. Sure he has CF and it can be scary, but he's also your typical 3 year old which can come with its fair share of scares in general. Like when you realize that he's been playing too quietly and find out that he's really been drawing on your walls and blinds or dropping toys in the toilet. He's goofy and curious and stubborn and everything you'd expect from a kid. He just also happens to take daily medications and supplements and do different daily treatments, but to him and us that's just a normal day. CF is just a part of his life and our daily routine.
We are so grateful to all of our friends and family who continue to support us on our personal journey and the journey to ultimately find a cure for CF. We also want to thank Luca's amazing team from John's Hopkins in St Pete who have been incredible every step of the way. There has been amazing progress in the treatment for CF espcially with Trikafta which has been able to help so many of those dealing with CF. Treatments like this are made possible through fundraising and donations for continued research.
Anything you can do to support the ongoing research and treatment for this disease is appreciated more than you know. With the progress that's been made it's only a matter of time before CF will stand for "cure found!" Thank you all, we love you and are so grateful for anything you can do to support.