There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, and friends who struggle every day just to breathe. I walk for them. Will you join me and support my fundraising goal?
My grandon,Ronan, has CF. I have watched how brave this boy is over the last 4 and a half years. He takes his enzymes everything he eats so he can digest his food and absorb its nutrients. He does his high frequency chest wall oscillation therapy twice a day for 30 minutes each session. This involves an inflatable vest that is attaches to a machine that mechanically performs chest physical therapy by vibrating at a high frequency. This is done to loose and thin the mucus in his lungs. Additional therapies include a nebulized antibiotic after testing positive for a bacteria after a throat swab.
Real progress has been made for those who have CF, but there is still no cure for this devastating disease and many lives are cut far too short. We’ve come so far, but there’s still so much work to do. I will not stop striding until all those with cystic fibrosis have a cure. We will not leave anyone behind.
Please support me and Ronan and all those with CF!
We are at a pivotal moment in the history of cystic fibrosis and your support matters. With your help, we can invest our resources in research today, while raising funds for tomorrow, to ensure we have what it takes to reach the finish line. Together, we can make CF stand for Cure Found. Please help me reach my fundraising goal!
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Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
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