Our son Ronan was diagnosed with CF at birth. Although he looks normal, his pancreas, lungs, liver, and other organs are under stress and at risk due to water not being able to pass through his cells correctly. The first few weeks were incredibly difficult but we were eager to learn and provide the best care for him.
Over four years later this has become our normal. He's an absolute champ, keeping up with his medications and treatments every day without a fuss. He loves tee-ball, is a stellar student, has a great sense of humor, and is the best big brother.
This year will be especially exciting for him as he'll hopefully get to start Trikafta, the most groundbreaking medication that treats the underlying disease at the cellular level. We're lucky that his mutations qualify, but won't stop until there's a real cure so our loved ones stop suffering and are able to live a full life. Our contributions directly affect the quality of life for these loved ones, and just in the last few decades we have been able to double life expectancy to around 40 through this foundation.
Please help us become the top contributing team for our third year in a row!
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.