Penny Johnson

My Great Strides Story

Maddison Rae was diagnosed with CF at 5 days old. She is currently on Trikafta and doing very well! She will be turning 11 this year!

Nearly 40,000 people in the United States have cystic fibrosis: a progressive, genetic disease that affects the lungs, pancreas, and other organs. They are moms, dads, sisters, brothers, daughters, sons, and friends who face the sobering prospect of a shortened lifespan. I walk for them.

Stories like Andrew. Andrew was born in Michigan in October and was diagnosed with CF at birth. He was always smiling and loved life. Andrew was on a list for lung transplant in California in March of 2004, but became so ill he had to go back home to Michigan. Unfortunately, he never had the chance again, as he passed away April 30, 2004 at the age of 10. His  grandmother, Sandra, continues to support the fight for a cure in honor of Andrew. 

Working alongside the CF community, the CF Foundation has fostered the development of more than a dozen CF treatments and helped add decades of life for people with CF. Yet, many people with CF do not benefit from existing therapies. Our vision is a cure for every person with cystic fibrosis – a life free from the burden of this disease – and we will not leave anyone behind.

You can support me!

By supporting my fundraising goal, you have an opportunity in your lifetime to be part of ending this disease. Please consider joining us and help make medical history.