Dear Friends and Family,
This year, we have so much to be grateful! Josh graduated from the University of Tampa after 3 ½ years of hard work and is beginning his new career. Jess, also now residing in Tampa, works for The Collective Genius doing Marketing. Michael rose to the Captain of his tennis team and continues to diligently mow the lawn between serves! Lacey, our 4-legged daughter – well she excels at what she does best…Absolutely nothing!! Health & Happiness…that makes for a beautiful life!
Living with cystic fibrosis has been transformative for our family this past November, with the F.D.A.’s early approval of a magical drug called Trifakta. This medicine, which Jessica was so fortunate enough to begin a few days after her 25th birthday, was a dream come true! This triple combination therapy corrects the underlying cause of this disease for 90% of the patients. Miracles DO happen!
However, just this past week, we lost another beautiful soul to this ravaging disease. Erin was just 25 years old, the same age as Jess. I met her at last year’s walk-a-thon. By that time, Jessica and Erin had already established a very special kinship! Her health deteriorated over the year. Her fight ended tragically waiting for a lung transplant. Words can’t describe the extreme sorrow we feel for her family.
In memory of Erin, and all of those still fighting for their lives, we are asking you to continue supporting the Cystic Fibrosis Foundation as we move towards the ultimate goal when CF finally stands for CURE FOUND!
To donate: https://tinyurl.com/upzxwmf
With deepest appreciation,
Val & Michael