Dear Friends and Family,
I started my CF fundraising campaign back in February before COVID took over. Then life for everyone turned upside down and our annual Great Strides walk-a-thon abruptly came to a halt. And yet, children every day are diagnosed with this chronic genetic disease and lives continue to be lost. How ironic is it that CFers were more prepared for this epidemic than the rest of the world because they are accustomed to: staying 6 feet apart from one another due to infection control, wearing masks when going to doctors' appointments, experiencing frequent hospitalizations, being homeschooled during hard times and constantly using hand sanitizers!
Living with cystic fibrosis has been transformative for our family this past November, with the F.D.A.’s early approval of a magical drug called Trifakta. This medicine, which Jessica was so fortunate enough to begin a few days after her 25th birthday, was a dream come true! This triple combination therapy corrects the underlying cause of this disease for 90% of the patients. Miracles DO happen!
However, just this past winter, we lost another beautiful soul to this ravaging disease. Erin was also 25 years old. I met her at last year’s walk-a-thon. By that time, Jessica and Erin had already established a very special kinship! Her health deteriorated over the year. Her fight ended tragically waiting for a lung transplant. Words can’t describe the extreme sorrow we feel for her family.
In memory of Erin, and all of those still fighting for their lives, we are asking you to continue supporting the Cystic Fibrosis Foundation as we move towards the ultimate goal when CF finally stands for CURE FOUND!
To donate: https://tinyurl.com/upzxwmf
With deepest appreciation,
Val & Michael