On April 30, 2012, my son Joshua lost his hard fought battle to cystic fibrosis. Josh was a bright light in our family and to his many friends. He carried his self with dignity, poise and laughter during his battle. He fought bravely and never gave up hope in getting his lung transplant. There are no words to describe the loss and devastation of losing this bright, vibrant young man. At his funeral, people had to wait outside the chapel and there was standing room only. This is the impact my son had on so many people during his almost 29 years of life. He was, and still is, my hero.
I, my family and friends, walk for Josh. For his battle to have not been in vain and for his memory not to be forgotten. Josh participated in many clinical trials during his frequent hospital stays over the years, and I take comfort from knowing that he might have helped make a difference for all the others out there with CF. He is the reason we walk every year to help find the cure for cystic fibrosis.
The CF Foundation is working hard to find the cure. With the introducation of Kalydeco to the CF world, many will live much longer lifes. I have seen before and after pictures of a patient who used Kalydeco and it is amazing to see. Right now they have Kalydeco for only 2 of the most common genes for CF. We need to help fund the Foundation so many other Cf genes can be fought with this amazing breakthrough.
By walking today, I am helping add tomorrows to the lives of people living with cystic fibrosis. I don't want anyone else to suffer the loss of a child with CF as I am still doing today.
Will you join me? Support me by making a donation to my Great Strides fundraising campaign today! Your gift is 100-percent tax deductible.