Hello friends!
Ella is off to college! She is almost 19 and other than the usual daily struggles with CF she has had a pretty good year so far, which she needed and deserved after last year. She recently had a Chest Xray that showed some changes in her lungs and with a CF Scan it revealed that she has some scarring in her lungs due to a previous infection.
Ella started at the University of South Florida in Tampa last week and seems to be enjoying it so far. GO BULLS. She has decided to stay somewhat close by as she navigates this next chapter in her life. Part of that will be the the transition from pediatric care to adult care over the next couple years. Her adult CF Specialist is a family friend so we have confidence that she will continue to be well taken care of. Her CF Care Team will be close by in Tampa and thats a comfort to us all.
The CF Great Strides Walk is September 30 at 9 am on Siesta Key Beach. Please come and join us if you can. We really hope to have your continued support. It is because of you that there are more adults living with CF, the average age is increasing, children and adults with CF are suffering less and there are promising drugs in the pipeline that could potentially cure CF.
PLEASE consider a donation of any amount. We are always so grateful for every cent because it truly continues to make a difference in the world of CF and in Ella's world. We continue to believe that there will be a cure in Ella’s lifetime and CF can then stand for Cure Found!
We thank you from the bottom of our hearts for your continued support in our mission to find a cure for Ella and prolong the life of all those with CF.
Forever Grateful,
-Meg & Kev, Ella, Luci, Lily and the Ella's Express team
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.