It has been almost eight years since Tyler was first diagnosed with Cystic Fibrosis. Tyler is now 15 years old and just completed 9th grade. He continues to love soccer, fishing, boating, and of course like most boys his age, playing video games. He has a very busy schedule which must also include taking approximately 18 pills a day as well as 40 minutes of airway clearance and 25 minutes of nebulizer treatments. Tyler has been very fortunate to have stayed healthy this year. We continue to attribute his good health to the Florida climate, which continues to provide year round opportunities for Tyler to enjoy fresh air while being active and staying healthy, and his adherence to his daily treatments.
Late last year, the FDA approved Trikafta, which Tyler began taking in November of 2019. This new medication treats the underlying cause of CF for 90% of CF patients. Unfortunately it is still not a cure, nor does it address all CF patients. So we will continue to raise funds for the CF Foundation to help CF stand for Cure Found. This is why we continue to ask for your support, prayers, and donations. 90 cents of every dollar you donate goes directly to research. Any amount (big or small) is GREATLY appreciated and will go a long way in helping the CF Foundation with their mission to find a cure for all of those who suffer from Cystic Fibrosis.
Thank you for your continued support!