Dear Friends and Family,
It is once again that time of year where I actively share Michael's story and ask for your help. It has been 8 1/2 years since we lost our little boy and it is hard to belive he would have been 23 this past September. So many little things still remind me of him. I also wonder how would he look now, would he have gone to college? What would his first car have been? Would he have a girlfriend? So many firsts that he didn't get to see. I do however take comfort in knowing that he is with Jesus and living free from pain.
There have been many advances in Cystic Fibrosis and many are living much longer lives. Just recently we saw the new drug Trikafta approved which has yielded unbelievable results for 90% of those with CF. However it is not a cure and there is still work to be done! We are still losing many far too young.
As Michael lay in a coma in ICU at Shands hospital, I promised him I would never give up until a cure was found. The walk was his favorite event and I chose this event as a way to honor him.
Please consider making a donation in his memory and for all of those still fighting the fight. So many of you continue to give each year and it warms my heart. Michael would be proud.
Until there is a cure,