Hudson was born with a condition called Meconium Ilius. We were told at the time that it was likely that he had Cystic Fibrosis because Meconium Ilius is typically related to Cystic Fibrosis, but we refused to believe this. Alex (dad) and I (mom) were both tested for Cystic Fibrosis genes and I was found to be a carrier and Alex was not. After 12 days in the NICU and multiple procedures, Hudson's Meconium Ilius was resolved and we started him on his first medication, Creon. Something we learned he would now have to take every time he eats to properly digest fats.
When Hudson was 2 months old, he was diagnosed with Cystic Fibrosis. We found out through genetic testing that the gene Alex carries is rare (only found in one other US case) and there isn't any information available on the type of Cystic Fibrosis that Hudson has. Since then Hudson has been to more doctors appointments and had more tests done then we can count.
Although Hudson has had a few hurdles, such as serious liver issues and bacterial pneumonia he is doing tremendously. Everyday we work to help Hudson's body operate and stay healthy and are confident he will continue to grow and overcome the obstacles that he is presented with. We have felt God's hand in all of Hudson's care and know Hudson is going to have an incredible "Glory Story" to share one day.
With that being said, we would love your help to spread awareness about Cystic Fibrosis and raise funds to help find the path to a cure. We now truly know that to breathe well is a gift and with your help we hope to give that life long gift to Hudson.
Join our team and help us get one step closer to a cure for cystic fibrosis – a rare, genetic, life-shortening disease that makes it difficult to breathe.
With supporters like you by our side, the Cystic Fibrosis Foundation continues to lead the way in the fight against CF, fueling extraordinary medical and scientific progress. The life expectancy of someone born with CF has doubled in the last 30 years. Despite this progress, many people with CF do not benefit from existing therapies either because their disease is too advanced or because their specific genetic mutations will not respond. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day in the face of this devasting disease.
We walk in Great Strides for them.
Will you join us in Hustling for Hudson?
Great Strides is a fun event that provides a fantastic opportunity for family, friends, students, and colleagues to come together to make a difference in the lives of people with CF.
To participate, just click on the "Join our Team" button. From there, you can make a donation and start fundraising.
By joining our Great Strides team and making a donation, you will be part of a tenacious and passionate group of people committed to ending this disease. Together, let’s make CF stand for Cure Found!
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.