Hello friends!
It's that time of year again that I fill you in on Ella and her CF and ask for your help. Ella just started her sophmore year at The University of South Florida and is "living on her own". She no longer has to listen to me nag her to do her treatments and take her meds every day (only some days and mostly because I can't help it ;). She tells me she does them and I can only believe her. She just turned 20. How can that be?
Ella had a transition visit with the adult CF Care Team from USF/Tampa General Hospital over the summer and will be having her first visit with them in a couple weeks. We will miss her team at All Children's Hospital as they took great care of our girl for 19 years. We also know that she will be well cared for moving forward. She has had a good year but will be having another surgery in November to hopefully clear up her nasal passages and provide her some relief from headaches and nasal congestion.
The CF Great Strides Walk is October 19 at 9 am on Siesta Key Beach. Please come and walk with us if you can. We really hope to have your continued support. It is because of you that there are more adults living with CF, the average age is still increasing, children and adults with CF are suffering less and there are promising drugs moving forward in the pipeline that could potentially cure CF.
PLEASE consider a donation of any amount. We are always so grateful for every cent because it truly continues to make a difference in the world of CF and in Ella's world. We believe that there will be a cure in Ella’s lifetime and CF can then stand for Cure Found!
We thank you from the bottom of our hearts for your continued support in our mission to find a cure for Ella and prolong the life of all those with CF.
Forever Grateful,
-Meg & Kev, Ella, Luci, Lily and the Ella's Express team
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.