Elken's Village 2024!
We are coming together in support of Elken and his family, fighting to find a cure for Cystic Fibrosis!
Imagine if Elken was your little boy, or your nephew, and you knew it was VERY LIKELY for a CURE to be FOUND in his lifetime!! Imagine being a part of that group of advocates who helped each person with cystic fibrosis live a FULL and HEALTHY life!!
Cystic Fibrosis can start as an invisible disease in some people, like Elken. The truth is, it affects every aspect of his life, and will continue to do so as he gets older. This rare disease is LIFE ALTERING, LIFE THREATENING, and as of today - without a cure. It affects his digestive health, his respiratory health, his reproductive health, his mental health, and his quality of life. Some people with cystic fibrosis are not eligible for ANY medication to help them in their lifetime. We are DETERMINED to be a positive influence for CHANGE and CURE.
Thank you from the BOTTOM OF OUR HEARTS for helping in this small way! It really is BIG to us.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.