Please join us on Saturday April 18, 2020 for the Cystic Fibrosis Foundation’s Great Strides Walk to Cure CF in Downtown West Palm Beach at Meyer Amphitheatre. This annual event, which raises more than $45 million nationwide, celebrates the lives of the 30,000 people who have CF as well as the memory of those that have lost their battle.
Our Mitchell would have been 47 years old this year. He lost his battle 2 ½ years ago but he will always remain part of us. He continues to be our inspiration and motivation. We know that Mitch cared deeply about his CF brothers and sisters and lived his life taking part in clinical trials and new therapies so that one day, others would be able to lead a more normalized life.
It is hard to believe that 47 years ago there was no hope, no research, no drugs and the average age was only 9 years. Today, because of your support of our family and the CF Foundation, all that has changed. Four drugs Kalydeco, Orkambi, Symdeko and our newest drug, Trikafta, have made a difference. These drugs treat the basic defect and stop the progression of the disease in approximately 90% of the CF patient population. Although this is not a cure, it is a life changing drug for most of our patients. But we are not yet done with our fight against CF.
There are still 10% of our patients who have rare mutations that will not respond to these drugs. The Foundation will continue to focus on new drugs that will correct the basic defect for the nonsense and other rare mutations by repairing, restoring and / or replacing the CFTR protein and through gene editing, gene modification and gene transfer, to ultimately find a one cure for CF.
And for those that are waiting for one of the these yet undiscovered new therapies to appear – we must continue to focus on new ant-infective drugs and anti-inflammatory drugs so our patients are as healthy as possible when this “cure” is finally available.
And our passion, for those that have advanced lung disease, where none of these efforts will come in time to make a difference in their lives, we must continue to pursue research in lung transplantation. Because of Mitch and our family, the CF Foundation has launched a $23 million Lung Transplant Initiative and has established the Mitch Greenberg Research Award in Lung Transplantation Research. This award, given to Dr. Jason Christie and his team, will focus on how to improve the outcomes of lung transplantation by identifying and treating chronic rejection.
Mitch was deeply concerned with those that had advanced lung disease for which these new drugs would not be available in time to make a difference in their lives. We must do more to enhance our understanding of advanced lung disease and post-transplant health so these individuals will have the opportunity for life. The transplant journey is not easy. There are no guarantees and too many young people, like Mitch, will go through this journey with a less than acceptable outcome. It is our dream that others who embark on this TX journey will truly receive the gift of life that will change their lives forever. Mitch will always be part of our life and we hope that his energy and enthusiasm for life will continue to make a difference in the lives of so many others.
Please support our family once again as we join thousands of others throughout this country to raise money through the Cystic Fibrosis Foundation’s GREAT STRIDES Walk to Cure CF. I ask that you once again support our team - More than Just Mitch - for this year's walk. A generous donation to the CF Foundation in honor of Mitch: $50, $100, or $1,000 – whatever amount you feel comfortable with – would be greatly appreciated. You can make a donation online by going to
If you are here in Florida on April 18, we hope you will join us at the Meyer Amphitheatre on walk day. Just go to the link above and register to be part of our team. OR just contact me at 301-674-4077 / firstname.lastname@example.org.
You can also mail us a donation to: 3546 S Ocean Blvd #902, Palm Beach, FL 33480. If you have received this through snail mail, a return envelope has been enclosed for your convenience.
As always, we thank you with every breath in our body. We miss Mitchell every day and think of him always. But we know he is watching us and smiling down on us as we move forward to ensure that his CF brothers and sisters will have a longer life than his 44 short years. Thank you for keeping Mitch’s memory alive.
Important note on Attendance at Foundation Events:
Infections can exacerbate CF symptoms and worsen lung function, so we ask attendees at Foundation-sponsored events to observe the following best practices to reduce the risk of germ transmission:
Regularly wash hands with soap and water or with an alcohol-based hand gel.
Cover coughs and sneezes with a tissue or your inner elbow.
Maintain a safe 6-foot distance from anyone with a cold or infection.
To further reduce the risk of cross-infection, the Foundation’s attendance policy recommends that all people with CF maintain a safe 6-foot distance from each other at all times while attending an outdoor Foundation-sponsored event. All Great Strides walks are non-smoking events.