There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends and co-workers who struggle every day just to breathe. We walk for them and my son, Miles. I hope you will support me in my efforts.
Real progress has been made in the search for a cure, but the lives of people with CF are still cut far too short. There still is no cure for this devastating disease. By walking today, we are helping add tomorrows to the lives of people living with cystic fibrosis. Will you join us? Support Miles by making a donation to our Great Strides fundraising campaign today!
In the 1950's people with CF would rarely live to see their 6th birthday. Today the median age for a person living with CF is 40. That progress is beyond amazing, but it's not good enough. No parent wants to out live their child. Finding a cure for cystic fibrosis is NOT funded by the federal government. 91 cents from every dollar donated gets invested into finding a cure. Any and all advancements in drug development, CF research, and clinical trails have been made possible because of the Cystic Fibrosis Foundation and the generous donations from people like you. Thank you!
Join our Team. Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families.
A message from Team Miles for Miles.
We are so fortunate and thankful. Last year Miles started a medication (Symdeko) for his specific gene mutation. Symdeko helps his cells produce the salt that his body needs to break down thick sticky mucus in his lungs and other vital organs. We are very happy to share that while on this twice daily medication, there’s been an improvement in his lung function! Yahooooo!
We know we are (he is) so blessed, but the fight is FAR from over. Symdeko is not a cure. It’s a bandage and a way to slow down the progression of the disease. Still, we know we are getting close. Close to finding the cure. We can feel it.
Though there are now fantastic medications on the market that can add decades to the lives of many people with CF... those medications are NOT cures and with over 2,000 different mutations, WE NEED YOUR HELP! Together we can make CF stand for cure found. Thank you to the family and friends who have spread awareness and fundraised to help our boy find his cure. We love you and are so grateful for your love, support, and encouragement.
Please help us reach our fundraising goal by donating to our Great Strides fundraising campaign. Your gift will help add tomorrows to the lives of people with cystic fibrosis by supporting life-saving research and medical progress. Your gift is 100-percent tax deductible.
Important note on Attendance at Foundation Events:
Infections can exacerbate CF symptoms and worsen lung function, so we ask attendees at Foundation-sponsored events to observe the following best practices to reduce the risk of germ transmission:
Regularly wash hands with soap and water or with an alcohol-based hand gel.
Cover coughs and sneezes with a tissue or your inner elbow.
Maintain a safe 6-foot distance from anyone with a cold or infection.
To further reduce the risk of cross-infection, the Foundation’s attendance policy recommends that all people with CF maintain a safe 6-foot distance from each other at all times while attending an outdoor Foundation-sponsored event. All Great Strides walks are non-smoking events.