I can’t believe we’re already gearing up for our second walk! This past year flew by for us. It seems like yesterday we had just learned of Haylie’s diagnosis and all the emotions that came along with it. What started off as pure joy and excitement after she was born quickly turned into fear and anxiety of the unknowns of the future. But we made it through this first year and I am just amazed at everything that has happened in the last 365 days. Haylie overcame some big obstacles that were in her way and only 1 hospital stay. She has proved to all of us what a little warrior she is and is so determined to do whatever she puts her mind to. I know she is only one but she is already one of the strongest people I’ve ever known. We have also had quite a few fundraisers and events that Ryan and I put on and we will soon be crossing the ocean on paddleboards to raise awareness. We have learned what amazing family, friends, and community we have. You have all shown us nothing but love and support and without you all, I really don’t know where we would be. And last, the highlight of 2019 I would say was the debut of the new drug called Trikafta. This is known as the “miracle drug” that was approved by the FDA in October. To say it is changing the lives of those living with CF is an understatement. There are so many positive stories that I have heard but the most important thing to know is, this medication coming out, and all the success it has led to, is directly a result of your donations. But, even with Trikafta on the market now, there is still a lot of work that needs to be done. Trikafta is not a cure and it is not compatible for everyone with CF. It’s also only available to people 12 years of age and older. So until a cure is found we will continue to walk and raise money for our Haylie and everyone else living with this disease. We will walk until CF stands for “Cure Found” and with your help, I truly believe it will someday! We hope to see you there! ’œ’œ’œ
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There are approximately 30,000 Americans living with cystic fibrosis. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day just to breathe. We walk for them. Will you join us? To become a member of our team, just click on the "Join our Team" button. From there, you can make a donation and start fundraising.
By joining our team and making a donation, you are joining a growing group of people committed to finding a cure for cystic fibrosis. We will not rest until all those with cystic fibrosis have a cure. The time is now. Together, we can conquer this disease.
Great Strides is a fun event that provides a fantastic opportunity for family, friends, students, and colleagues to come together to make a difference in the lives of people with CF -- join our team today!