Twelve years ago while holding my perfect little newborn I got a call from the doctor. Hazel's newborn screen came back "abnormal" for cystic fibrosis. Abnormal, what does abnormal mean, what do we do, is she going to die? The tears and worry came so quickly I could barely communicate what was going on to my husband. The doctors only instructions were "don't worry, just get her teatsted." Testing I could handle, she was too late with the not worrying bit Luckily there is a cystic fibrosis clinic in our area, we only had to wait a few days before she could get tested. A weekend full of learning about CF, crying, worrying, and licking her to see if she tastes salty.
The results came back that Hazel was a symptomless carrier. She does not have CF but she could pass it on to her children. So we walk. Every year. We walk for the kids who aren't symptomless carriers and for those that are so that they won't have to worry about their children. We walk for the parents who deal with pills and therapies and for the parents spending a weekend worrying about their newborn. We walk, every year until a cure is found.
This is where you come in. I'm asking for donations, any amount is helpful. Or better yet join us and beg your friends for donations.
I am so thnkful every year for everyones support to help us make CF stand for Cure Found!