What is Cystic fibrosis (CF)? It is a genetic disease that affects 30,000 people in the United States each year. A defective gene causes the body to produce unusually thick, sticky mucus that: clogs the lungs and leads to life-threatening lung infections; and obstructs the pancreas from allowing proper food absorption. The predicted median age of survival for a person with CF is in the early 40s.
Why this fundraiser? Great Strides is CFF’s largest and most successful national fundraising event. Nearly 90 cents of every dollar raised goes straight to research! Research and care funded by the CF Foundation are making a huge difference in extending the quality of life for those with CF. With recent modulator meds approved in 2019, life expectancy has increased but the entire population cannot benifit due to the many mutations of the disease. Your help is needed now more than ever to ensure that a cure is found.
How does this help Lauren? Lauren was diagnosed with CF at 5 months of age. She enjoys dancing, spending time with family and friends. Improved medications and therapies aids Lauren and other CF patients a chance to successfully fight CF.
How can YOU help Lauren? This year, we are walking in the Great Strides walk virtually on May 15th. Please help us meet our fundraising goal of $3,000.00 by sponsoring us. Making a tax deductible donation is easy. Choose one of the two methods:
*Online contributions: Just cut and paste this link into your browser:
OR www.cff.org Team Lauren Luteran, Orlando Baldwin Park location
*Additionally, donations may be mailed to our residence: Team Lauren Luteran 5014 Capistrano Court Orlando, FL 32837. Please accept our sincere gratitude for any contribution you may make to help keep her active and enjoying life along with others in their quest to live a normal and productive life.
You can make a difference in the lives of those with CF! Make CF stand for Cure Found…
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and wellbeing of the CF community, those eligible to be vaccinated are required to be fully vaccinated to join us in-person for the event. If you are not fully vaccinated, we invite you to participate virtually if that option exists.
We do not plan to ask for you to provide proof of vaccination. We are, however, counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID and will abide by this requirement.
We cannot guarantee that all people in attendance at the event, including participants, sponsors, volunteers, and vendors, have been fully vaccinated.