Thank you once again for donating money to the CF Foundation. I appreciate that you are willing to contribute to the foundation year after year for my and other CF kids’ sake. I turned 14 in February of this year. I am currently in eighth grade, and in a few months I’ll be beginning ninth grade at East River High School. I’m looking forward to it!
I’m currently participating on my middle school’s archery and track teams, and I enjoy playing soccer and volleyball. Before I started taking the medicine Orkambi two years ago, I never would have had the endurance to participate in all these sports. Orkambi, among other meds that I take every day, has really helped to improve my health and general well-being.
Speaking of new and innovative drugs, the medication known as Symdeko is the latest drug to come out of the CF pipeline, and it was created specifically to treat my genetic mutation of CF. In clinical trials, it had even better physical results than Orkambi, and fewer negative side effects. I’m supposed to begin consuming Symdeko sometime in May.
The CF Foundation’s Lake Nona Great Strides walk will take place on May 5th, at Moss Park. I would greatly appreciate it if you would attend the walk and donate money to the CF Foundation so they can continue their hard work on finding a cure to Cystic Fibrosis.
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.