My A-MAZING nephew, Austin, was diagnosed with cystic fibrosis at just eight days old. Thankfully, he breezed through the first seven years of his life relatively smoothly. However, last year began with a new challenge for him, and it's been a stark reminder of the uncertainy of his future.
There are approximately 30,000 Americans living with cystic fibrosis. They are moms & dads, sons & daughters, brothers & sisters, nieces & nephews, grandchildren, cousins, friends, neighbors and co-workers who struggle every day just to breathe. We walk for them.
Great Strides is a fun, family-friendly event that raises awareness and support for people with CF and their families. "Austin Powers Over CF" is currently a national team; our family and friends will be walking in New York, Pennsylvania, North Carolina and Florida. By walking today, we are helping add tomorrows to the lives of those living with cystic fibrosis.
Fantastic progress has been made recently in the search for a cure, but sadly, not all patients living with CF will benefit. There is not a "one size fits all" kind of treatment, and the lives of those with CF continues to be cut far too short. This will be our ninth year participating in Great Strides. And we will stride until it's done...until there is a cure for all.
There is more than one way you can help. You can donate to my Great Strides fundraising campaign to help me reach my fundraising goal. Your gift will help support life-saving research and medical progress and is 100% tax deductible. Or you can come walk WITH us and make our physical presence larger to the community as a whole. Please help us.
Our hearts cannot fully express our overwhelming gratitude for your support.
Foundation-Sponsored Indoor and Outdoor Events and Gatherings
The Foundation is closely following the evolving coronavirus outbreak. We will continue to monitor coronavirus guidance from the Centers for Disease Control and Prevention and assess whether we need to change any scheduled events.
To reduce the risk of getting and spreading germs at CF Foundation-sponsored events, we ask that everyone follow basic best practices by regularly cleaning your hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow, and maintaining a safe 6-foot distance from anyone with a cold or infection. Medical evidence shows that germs may spread among people with CF through direct and indirect contact, as well as through droplets that travel short distances when a person coughs or sneezes. These germs can lead to worsening symptoms and speed decline in lung function.
To further help reduce the risk of cross-infection, the Foundation's attendance policy recommends inviting only one person with CF to attend the indoor portion of a Foundation-sponsored event at a specific time. For the outdoor portion, the Foundation recommends that all people with CF maintain a safe 6-foot distance from each other at all times.