Hello! My name is Lauren Luteran. I am a 22 year-old Cystic Fibrosis advocate, fighter and warrior. I was diagnosed with CF since five months old. Growing up with this disease, I never imagined my life would consist of taking 30+ pills a day, chest therapies at least three times a day, spending days and sometimes weeks in a hospital and enduring lifes biggest challenge, surviving.
I grew up dancing since the age of 5 and ever since, I found a deep rooted love for the artform. It's my escape from reality, stressors and the ongoing complications that CF has on my physical and mental well-being. Some of my other hobbies include filling my space with reading, writing and spending time with family and friends that I love.
In November 2021, I had the gift, I should say miracle, of a lifetime presented to me in a time of turmoil. Trikafta, a CF modulator and drug on the market, became available for people like me who have the correct mutation to qualify. Since recieving this miracle drug, I have seen a brighter future for myself and have been able to accomplish some goals and dreams I otherwise may have not been alive to do before.
Some accomplsihments I have achieved are publishing a memoir, Breathing Easy.. Through 65 Roses, particpating as a contestant on one of my favorite tv shows growing up, So You Think You Can Dance, public speaking for organizations like the Make-A-Wish Foundation and Cystic Fibrosis Foudnation and educating others daily to spread awareness for this disease.
The CF community has been a helpful resource in making these dreams and aspirations come to fruition for my family and I. I would like to say it has been a collaborative effort. Our family has been involved with the Central Florida Chapter since the moment we found out about my diagnosis. The foundation has given me the opportunity to not only raise funds for CF, but now my parents have passed down the torch to me in leading this advocacy work. I am proud to represent and fight for people who are just like me, in search of hope during this fight.
It has been a difficult road for me to say the least. I have been faced with life's biggest hurdles because of CF, plus whatever curveball's life decided to throw my way beyond this illness. Nonetheless, I am passionate about this cause and the CF Foundation's efforts in changing the lives of those who face adversity like me. I believe that that my life's purpose is to bring awareness to a disease that deserves all the attention. I will continue to pay it foward and be a part of the foundations mission in seeking a cure, making CF stand for Cure Found.
I hope you will help me in reach my goal and join my team efforts. This cause has impacted my family and I to the highest degree and I hope that we can make more miracles happen for those a part of this community.
As always, breathe easy..
Lauren Marie Luteran
Join our team and help us get one step closer to a cure for cystic fibrosis – a rare, genetic, life-shortening disease that makes it difficult to breathe.
With supporters like you by our side, the Cystic Fibrosis Foundation continues to lead the way in the fight against CF, fueling extraordinary medical and scientific progress. The life expectancy of someone born with CF has doubled in the last 30 years. Despite this progress, many people with CF do not benefit from existing therapies either because their disease is too advanced or because their specific genetic mutations will not respond. They are moms, dads, sisters, brothers, daughters, sons, friends, and co-workers who struggle every day in the face of this devasting disease.
We walk in Great Strides for them.
Will you join us?
Great Strides is a fun event that provides a fantastic opportunity for family, friends, students, and colleagues to come together to make a difference in the lives of people with CF.
To participate, just click on the "Join our Team" button. From there, you can make a donation and start fundraising.
By joining our Great Strides team and making a donation, you will be part of a tenacious and passionate group of people committed to ending this disease. Together, let’s make CF stand for Cure Found!
IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated June 15, 2022. To reduce the risk of COVID-19 the Foundation is taking steps to host safe events for our community. Please be advised that events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
To minimize the risk of COVID-19 infection, we ask that attendees at CF Foundation events follow these steps:
Where mandated, practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household.
Face masks are encouraged and should be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should only attend outdoor CF Foundation events where they are able to distance and stay within their family group.) NOTE: For events hosted by the CF Foundation, masks will be made available on-site, when possible.
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, and by covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19.
For indoor events, it is CFF policy to invite only one person with CF to be in-person at the event at a time. For outdoor events, people with CF should maintain a safe 6-foot distance from persons outside of their household at all times.
FOR YOUR SAFETY AND THE SAFETY OF OTHERS:
For the health and well-being of the CF community, we strongly encourage that participants be fully vaccinated and have received the CDC recommended booster shot when joining us in-person for the event.
Certain CF Foundation events may require vaccination to attend.
Participants are strongly encouraged to test within 24 hours prior of arrival at an event or meeting, or as close as possible to the time of departure (if traveling).
Please be advised certain events, localities, and venues may require you to be fully vaccinated and show proof of vaccination. We will communicate these requirements in event communications.
For events where the CF Foundation requires full vaccination, meeting participants must be fully vaccinated against COVID-19 at least two weeks before the date on which you will first attend the meeting. Registration and attendance at such events may require agreement to health and safety protocols and/or COVID liability waivers.
We are counting on the fact that you appreciate the potential consequences of exposing members of the CF community to COVID-19 and will not attend an event if you test positive, or have been recently exposed to COVID-19.
We cannot guarantee that all people present at the event, including participants, sponsors, volunteers, vendors, or others, have been fully vaccinated.