
What is Cystic fibrosis (CF)? It is a genetic disease that affects 30,000 people in the United States each year. A defective gene causes the body to produce unusually thick, sticky mucus that: clogs the lungs and leads to life-threatening lung infections; and obstructs the pancreas from allowing proper food absorption. The predicted median age of survival for a person with CF is in the early 40s.
Why this fundraiser? Great Strides is CFF’s largest and most successful national fundraising event. Nearly 90 cents of every dollar raised goes straight to research! Research and care funded by the CF Foundation are making a huge difference in extending the quality of life for those with CF. In January of 2012, the FDA approved the first drug available that targets the underlying cause of this disease. Others are in the pipeline but we need to keep the research going so we do not continue to lose precious lives to CF each day. That's why your help is needed now more than ever to ensure that a cure is found. How does this help Lauren? Lauren was diagnosed with CF at 5 months of age. She enjoys dancing, spending time with family and friends. In addition to taking 20+ pills daily, she has known nothing less than 2 + hours of daily chest physiotherapy and mix of inhalers on well days. Illness brings an added host of medications and therapies. Improved medications and therapies aids Lauren and other CF patients at a chance to successfully fight CF. Presently Lauren continues to fight two major bacterial infections along with CF itselft, but as you can see from her smile, her love for life is undeniably her strength that keeps her going.
How can YOU help Lauren? This year, we are walking in the Great Strides walk virtually on May 15th. Please help us meet our fundraising goal of $3,000.00 by sponsoring us. Making a tax deductible donation is easy. Choose one of the two methods:
*Online contributions: Just cut and paste this link into your browser:
https://fightcf.cff.org/site/TR/GreatStrides/32_Florida_Orlando?team_id=97986&pg=team&fr_id=8588
OR www.cff.org Team Lauren Luteran, Orlando Baldwin Park location
*Additionally, donations may be mailed to our residence: Team Lauren Luteran 5014 Capistrano Court Orlando, FL 32837. Please accept our sincere gratitude for any contribution you may make to help keep her active and enjoying life along with others in their quest to live a normal and productive life.
You can make a difference in the lives of those with CF! Make CF stand for Cure Found…
Thank you!
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ATTENDANCE POLICY:
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.