What is Cystic fibrosis (CF)? It is a genetic disease that affects 30,000 people in the United States each year. A defective gene causes the body to produce unusually thick, sticky mucus that: clogs the lungs and leads to life-threatening lung infections; and obstructs the pancreas from allowing proper food absorption. The predicted median age of survival for a person with CF is in the early 40s.
Why this fundraiser? Great Strides is CFF’s largest and most successful National fundraising event. Nearly 90 cents of every dollar raised goes straight to research! Research and care funded by the CF Foundation are making a huge difference in extending the quality of life for those with CF. There are new and improved drug therapies available that target the underlying cause of this disease. Others are in the pipeline but we need to keep the research going so we do not continue to lose precious lives to CF each day. That's why your help is needed now more than ever to ensure that a cure is found. How does this help Lauren? Lauren was diagnosed with CF at 5 months of age. Lauren enjoys dancing, loves Disney, traveling and spending time with family and friends. In addition to taking 30+ pills daily, she has known nothing less than 3 + hours of daily chest physiotherapy and mix of inhalers on well days. Illness brings an added host of medications and therapies. Improved medications and therapies aids Lauren and other CF patients at a chance to successfully fight CF. This year, as last, Lauren continues to fight two major bacterial infections along with CF itselft, but as you can see from her smile, her love for life is undeniably her strength that keeps her going. This past year, Lauren was blessed to get her hands on what we call "the miracle drug" because of all your help in donations. Trikafta was FDA approved and has made our family hopeful there is a cure on the horizon.
How can YOU help Lauren? This year, we are walking in the Great Strides walk virtually on May 15, 2021. Please help us meet our fundraising goal of $3,000.00 by sponsoring us. Making a tax deductible donation is easy. Choose one of the two methods:
*Online contributions: Just cut and paste this link into your browser:https://fightcf.cff.org/site/TR/GreatStrides/32_Florida_Orlando?team_id=97986&pg=team&fr_id=8588
*Donations may be mailed to our residence: Team Lauren Luteran 5014 Capistrano Court Orlando, FL 32837. Please accept our sincere gratitude for any contribution you may make to help keep her active and enjoying life along with others in their quest to live a normal and productive life.
Due to the COVID-19 pandemic, indoor events sponsored by the CF Foundation are strictly prohibited at this time. Scheduled outdoor events must adhere to strict requirements to minimize the risk of COVID-19 infection. Events may be subject to change at any time based on guidance from the Centers for Disease Control and Prevention and local health officials.
IMPORTANT NOTE ON ATTENDANCE AT OUTDOOR FOUNDATION EVENTS:
To minimize the risk of COVID-19 infection, attendees at CF Foundation events must adhere to the following requirements:
Practice physical distancing and maintain at least a safe 6-foot distance from persons outside of their household at all times
Face masks strongly encouraged and expected to be worn in accordance with local guidelines. (Note, children under two years of age should not wear masks due to safety concerns and therefore should not attend CF Foundation events where there is risk of interacting with someone outside of their household.)
Follow basic infection, prevention and control practices by regularly washing hands with soap and water or with an alcohol-based hand gel, covering your cough or sneeze with a tissue or your inner elbow.
Persons with CF should consult their physician before participation in any in-person event as they may be at an increased risk for severe illness from COVID-19. People with CF should maintain a safe 6-foot distance from persons outside of their household at all times.