My Great Strides Story
Thomas John Bubacz (T.J.) was born and diagnosed at birth with Cystic Fibrosis. He was born with the most severe mutation, Double delta F508. From the day he was born, he fought. He fought all the way until the end. On June 25, 2021 at 4:24 a.m. with his parents and sisters at his side, T.J. lost the fight and took his last breath.
He lost the fight before a cure could be found, so we will continue to fight for him. Please consider donating toward the event we will participate in on 5/4 to continue fighting the fight in T.J.s name.
There is currently no cure for cystic fibrosis. By participating in Great Strides, I am helping to end this disease for thousands of people impacted by CF.
Cystic fibrosis affects the lungs, pancreas, and other organs. The symptoms can vary from person to person, and as people with CF live longer than ever before, their disease can become more complicated, leading to serious health issues.
The Cystic Fibrosis Foundation has made extraordinary progress — including fostering the development of more than a dozen CF treatments — but these treatments are not a cure and not everyone can benefit from them. We must keep going.
Your support makes a difference.
By donating to my fundraising goal, you will help advance our mission for a cure for all. Please consider joining us and helping make CF stand for Cure Found.
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IMPORTANT NOTE ON ATTENDANCE AT FOUNDATION EVENTS:
Updated July 5th, 2023
The CF Foundation is committed to ensuring the health and wellbeing of individuals attending Foundation events. Individuals attending CF Foundation events must abide by the Foundation's Event Attendance Policy www.cff.org/attendancepolicy, which includes guidance for event attendees living with cystic fibrosis.